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For me

Jan 17, 2024

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Glad you’re here! The Our Way of Life Australia is a group of adults living with Prader-Willi syndrome (PWS). They have made brochures to assist you in living your best life. Topics include making friends, mental health, work and support, the NDIS and more.

People living with PWS have lots of fun in life. They have lots of challenges too, don’t they?

There are videos and articles on this website that could be helpful for you.

There’s also information for others, like your family.

There’s even articles for support workers, health workers and community members to help them understand PWS better. Then they can support you better. Yay!

Meet other Australians living with PWS from the Our Way Australia (OWLA) group on this OWLA video

General education about PWS video that you might like to share with others

Videos on sensitive topics have been made by PWSA UK. They are all about growing up. The animated videos are about relationships, different bodies, sexuality and being safe online.
Growing up and feelings
Adult relationships, sex and consent
Different relationships and sexuality
Hygiene and self-examination
Body changes: Girls and women with PWS
Menstruation and periods
Body changes: Boys and men with PWS
Be safe online

There are some easy read guides especially for people living with PWS about healthy eating, getting ready to go to hospital and more (from the UK)
It’s important to look after your emotional health and wellbeing. Here is a brochure about coping with anxiety, with some handy tips.
If you are looking for a place to live in supported accommodation, the NDIS might be able to help you with funding for Supported Independent Living (SIL easy read).

If you are not happy with a disabiliy service provider, you can let the Quality and Safeguards Commission know about it. Learn about the Commission and how to make a complaint.

Learn about NDIS planning meetings that you might be attending (easy read)
Learn about service providers who can give you support

Get in touch

We welcome enquiries about anything related to PWS. This could be about the changes through the life stage of living with PWS, individual needs, services, getting help or interacting with the NDIS, the Quality and Safeguards Commission or the AAT.

Contact us