Our people

Meet the national Board of Prader-Willi Syndrome Australia (Ltd). We are glad to have a Board comprising people from a variety of backgrounds. They bring highly valued skills to our organisation. Their enthusiasm and commitment is hugely appreciated as they steer the organisation in ways that makes lives better for people living with the disability Prader-Willi Syndrome (PWS). The families, providers and mainstream community across Australia all have a role to play in improving the lives of our people. The volunteer Board works collaboratively with them to achieve better outcomes together.

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Board Directors

James O’Brien

Chair

James’ education, management and operating experience spans national and international charities, special school settings and disability services.

James’ volunteer appointments include:

IPWSO Trustee from 2016-2022 as well as holding the role of Vice-President
Council Member, RARE Global Advocacy Leadership Council, Global Genes
Member, Telehealth Working Group, World Health Organisation, established to share technology-based solutions to promote health equalisation.

James is a Churchill Fellow, visiting USA, UK, Europe and India to research regional, rural and remote delivery of person and family support services.

James has a son living with PWS. This drives his desire to establish PWS education, advocacy and support services across Australia and around the globe.

Mal Jackson

Treasurer

Mal has many years of experience in the corporate sector, with a focus on marketing. Mal has built teams and managed the engagement of many stakeholders.

Monique Ulani

Director

Monique is an experienced social worker, specialising in child wellbeing and development. Monique’s experience working in regional and remote areas has made her passionate about provision of care and equitable access to support.

Monique has a daughter with Prader-Willi Syndrome.

Georgina Loughnan

OAM Director

Georgina is based at the Prader-Willi syndrome specialist clinic, Metabolism and Obesity Services at the Royal Prince Alfred Hospital, Camperdown, NSW.

Georgina has worked with IPWSO for many years on the Famcare Committee. She is also a former member of the IPWSO Board of Trustees.

Craig Moore

Vice-Chair

Craig is a trained psychologist and worked for many years as a senior manager in a government community services department.

With deep experience as the CEO of a major disability service, Craig has a sophisticated understanding of the disability sector and the changes brought about by the NDIS. Craig’s interest in PWS was raised through his work. Since then, Craig has met many people living with PWS and is a Trustee on the IPWSO Board.

Craig was awarded a Churchill Fellowship to research innovative practices in child welfare in Europe and North America.

Get in touch

We welcome enquiries about anything related to PWS. This could be about the changes through the life stage of living with PWS, individual needs, services, getting help or interacting with the NDIS, the Quality and Safeguards Commission or the AAT.